A guide of links of information that has helped me to understand the condition. I have cherry picked the best ones & hopefully these will help you, whether you are someone with the condition or a parent looking for information.
A project that I have set-up to raise awareness of the issues and implications of individuals diagnosed with Klinefelter’s Syndrome. Any contributions & help supporting this cause are appreciated!
Project 47XXY on Twitter
This is a PDF book, and very lengthy but well worth the read. I downloaded it to my iPad to read on the move. Covers all the questions you might want to ask when you go back to the hospital. When I was at the hospital they gave me this really odd leaflet with a man with a tight fitting blue t-shirt and bright red shorts, socks and sandals. I’m sure the guy on the picture has nothing to do with the condition – it did put me off. I think the health service should get Iain on the books and hand out this instead.
Founded in 1990 and achieved Registered Charity status in 1996. It exists to support all those affected by the condition. I was given a sign-up form for this association – I haven’t joined yet – still on my to-do list.
A guide to Klinefelter’s Syndrome by the BBC